NextAvenue.org – Deborah Carr, professor and chair of the sociology department at Boston University, has spent much of her career studying death and dying. That expertise led, in 2019, to an invitation to write an article in the Annual Review of Sociology about well-being at the end of life. Read more…
NextAvenue.org – For parents of adolescent children, the toughest talk is sitting down with the kids and discussing the facts of life. But for adult kids, the toughest talk can be sitting down with their elders and discussing their life and death decisions. COVID-19 has made that very personal talk far, far more complex — but even that much more critical.Read more…
We talk a lot about how we want to live our life. What are our goals? And yet, we often avoid a discussion about our goals for end of life. This has come more to the forefront during COVID.
Moderated by JABA CEO Marta Keane, this webinar will explain the importance of advance care planning, and how to approach it- what resources are available and who should be part of the discussion. Nathan Kottkamp and Dr. Angela Stiltner have a long history of advocating and educating on this topic. They will share their expertise and answer questions. It is time to start the conversation!
Would You Like to Make an Advance Directive or Supported Decision-making Plan? The disAbility Law Center of Virginia (dLCV) is offering FREE legal assistance to individuals with disabilities to create their own Advance Directive or Supported Decision-making Plan.
NPR – The COVID-19 pandemic caught most Americans by surprise, showing us the many ways we were not prepared for a widespread health emergency. At the University of Virginia, two professors of nursing say we should have trained more medical professionals in how to help patients and their families face the end of life. Read more…
NextAvenue.org – Tom Reynolds jokes that his doctors say he’s the “healthiest sick person we know.” The 71-year-old in Cocoa, Fla. resident has gone through 20 medical procedures.
“I have not been a good steward of my body,” he admits. “My wife and I were thinking ‘What if we get the coronavirus?’ We both have compromised immune systems.”
The coronavirus pandemic spurred him to put everything in writing.
Stress about susceptibility to COVID-19 may actually make a person more prone to illness. One way to manage stress is to take control of your health.
Reynolds maintains a sense of control by being proactive. He has been discussing his health and care plans with his loved ones for years.
“They’re very familiar with them. I don’t hold anything back,” he says.
NextAvenue.org -Last month, Minna Buck revised a document specifying her wishes should she become critically ill.
“No intubation,” she wrote in large letters on the form, making sure to include the date and her initials.
Buck, 91, had been following the news about COVID-19. She knew her chances of surviving a serious bout of the illness were slim. And she wanted to make sure she wouldn’t be put on a ventilator under any circumstances.
“I don’t want to put everybody through the anguish,” said Buck, who lives in a continuing care retirement community in Denver. Read more…
NPR Radio – “He will not die on your watch.”
That’s what the family of a patient told Sunita Puri when she was a resident in internal medicine. They were chilling words for the young doctor as she took over the care of a very sick man on the overnight shift.
To Puri, the patient, who had widespread metastatic liver cancer, appeared to be dying. She tried to talk with the family about forgoing heroic measures, to let him have peace in his last hours. But they were adamant.
“Do everything,” they told her. Hours after admitting him to the intensive care unit, she was overseeing chest compressions to revive him after his heart stopped. “I was blinking back tears,” she recalls. The man died that night.
Few people would say they want to die while undergoing painful last-minute resuscitation or while hooked up to machines in a hospital. Yet it’s the death many Americans end up with. Now a palliative care doctor at the University of Southern California, Puri is fighting for an alternative. Read More…
NBCNews – Many are considering medical instructions, guardianship designations and other legal contingency plans.
Even though Jayne Marlink has gone through cancer, a mastectomy, a hysterectomy and several other serious health scares over the last decade, she never felt the urgency to put together an advance health directive advising her son what to do in case she didn’t pull through.
But last week, as she watched the coronavirus pandemic rapidly unfold from her home in California, where over 1,000cases of COVID-19 have been counted, she wrote down her last wishes.
The possibility of prolonged sickness or even death from COVID-19 triggered an urgency in Marlink, 67, a retired educator from Sacramento.
“I’m vulnerable and I’m in that target age, and I knew I had to get this end-of-life stuff done,” she said. “This has put me face-to-face with my responsibility and what I need to do to make things easier for my son should anything bad happen. Read More…
Do you have an advance directive? Do you even know what one is? You’re not alone. A 2014 study published in the American Journal of Preventive Medicine found that out of 7,900 people surveyed, only 26 percent had an advance directive.
Nationwide, it’s estimated that only one out of six Americans say they’ve had advance care planning conversations with a doctor or other health care provider. The main reason given for not having an advanced directive? Lack of awareness.
Well, let’s take care of that first. Advance directives are two legal documents that express your end-of-life wishes should you be unable to communicate them yourself. One — a living will — allows you to choose the level of care you want in the event of medical crisis. The other — medical power of attorney — allows you to choose someone to make decisions on your behalf. In Virginia, these two documents are combined in one form, while in other states two separate forms may be required.
Another reason cited for not having an advance directive is the belief that it is complicated, requires a lawyer and is expensive. Not true. State forms are readily available on the internet, at the Virginia State Bar website (vsb.org), the National Healthcare Decision Day (April 16) website (nhdd.org), the National Hospice and Palliative Care Organization website (nhpco.org) and locally on the Jefferson Area Board for Aging’s website (jabacares.org/advancedirective).
In addition, JABA, the University of Virginia Health System, Sentara Martha Jefferson Hospital and Hospice of the Piedmont all have endorsed Healthcare Decisions Day and have committed themselves to raising awareness and educating the community about the importance of creating advance directives. You also can visit asyouwishvirginia.organd agingwithdignity.orgfor resources and support. Then all you need are a few bucks for a notary. It’s that easy.
Of course, many people resist or put off creating an advance directive because it’s often an uncomfortable and difficult issue to discuss. But it doesn’t have to be.
“The importance of having an advance directive benefits not only the individual, but the family members and other professional health care providers that may need to care for someone facing a serious or life-limiting illness,” J. Donald Schumacher, president and CEO of the National Hospice and Palliative Care Organization, noted in a statement on the 2014 study. “Equally important are the frank conversations that loved ones have with each other and care providers about the care that they would or would not want.”
Indeed, most families find that discussing these issues brings them closer and gives them more peace of mind. And it’s important to remember that advance directives are not just for older people with health issues. Any one of us, no matter what age, could find ourselves in a medical crisis as a result of a sudden illness or accident. Under those circumstances, how would you like to be cared for — and who would like to be making decisions for you? Creating an advance directive when you are healthy gives you the space and time to really think about what you would want.
One other misconception: People think an advance directive is just about the decision to “pull the plug” or not. It’s not. Some people value prolonging of life over all else, whereas others prioritize relief of pain and suffering or the effects of one’s care on loved ones. It’s your chance to tailor your medical care based on your own beliefs.
Remember, too, that having an advance directive can take an enormous burden off your loved ones. Think about how difficult it would be having to make an end-of-life decision for someone you love if his or her wishes were not known.
Having that conversation ahead of time makes it much easier on those you love should a medical crisis occur. For help having that conversation, you can visit The Conversation Project at theconversationproject.org.
Advance directives also can deepen your relationship with your doctors and other caregivers. It gets them on the same page with your wishes, so that they are more informed and personally involved with your care in a crisis situation.
Of course, there still can be trouble when critical decisions about your care need to be made. Doctors may disagree with your instructions, or with your family member, and your family may disagree with your doctors or with each other.
There still can be stress and tension under such emotional circumstances. But one thing experts agree on: It is much more stressful and difficult if you don’t have an advance directive.
David McNair handles publicity, marketing, media relations and social media efforts for the Jefferson Area Board for Aging.